West Virginia Worldwide Lyme Awareness 2014

West Virginia Worldwide Lyme Awareness 2014

State Coordinator:

Kelly Edmonds

Contact: kellyknits@comcast.net

When: Saturday, May 17th, 9am-1pm 

Where: Morgan's Grove Farmers Market

Come join us in spreading Lyme Disease Awareness!

Worldwide Lyme Auction Starts Friday April 25!

Worldwide Lyme aWARENESS auction

STARTS

April 25, 2014
01:00 AM EDT

ENDS

April 27, 2014
11:00 PM EDT

The items in this auction were all donated by Lyme patients. The money from this auction will go towards buying banners, yard signs or car magnets for the states involved in the Worldwide Lyme Protest.  These signs will all be reusable for next year and made with outdoor quality vinyl. 

Click Here to Visit Auction

Lyme Lives Here- A Simple Campaign that Everyone Can Do!

A simple campaign that all our Lyme Friends can participate in.

The point of the Lyme Lives Here Campaign is to make sure every state and every country is represented in the Worldwide Lyme Protest. 

* Put a sign that says, "Lyme Lives Here" in your front yard. Next to it you could also put a place for people to take brochures. 

* Make signs at your local support group and take pictures that say "Our town (name, NY) supports the 2014 World Wide Lyme Awareness Protest" (WWLAP)And then take some photos and send them to Lisa Hilton, the USA World Wide organizer, ( lisahilton4@gmail.com ) " And feel free to add your support group information!

* You can stand outside with a sign for example, on an intersection or at a park, of course don't block obstruct traffic or thru traffic. 

 * Hold up a sign at the mall, school, hospital grounds, or any public place. Check ahead to see if you need permission.

What great togetherness and real community we can show by doing this!

Find More Information Here

You can send pictures to lisa@whatislyme.com

or

Post them to Lyme Lives Here Facebook Page

Note* All pictures will be used publicly. Only send pictures that you are giving us permission to use on our Worldwide Website, whatislyme.com, www.worldwidelymeassociation.com and Facebook and other Social networking sites, and to send to newspaper and newstations and other media outlets. 

Lois and Beth from Massachusetts

About the Worldwide Lyme Protest 2014

Where: Global

When: May 16-18, 2014

What: Lyme Awareness Events around the world

The Worldwide Lyme Awareness Protest was started in 2013. Over 30 countries banned together to help spread awareness and protest over the lack of attention Lyme Disease gets. We want to bring attention to the need for research and education about tick borne infections.

Please join these sites!

WWLDAP Pinterest

WWLDAP Google Plus Page

WWLDAP Twitter

WWLDAP International Facebook Page

WWLDAP US Facebook Page


Event Information


US Coordinators
Lisa Hilton Email: lisa@whatislyme.com


Auction Coordinator
Angele Rice Email: angbet35@gmail.com


Media Volunteers
Michelle.Marie.Louie@gmail.com Phone: 602-635-0005





Alabama
State Coordinator: Lynne Hatcher
Contact: 11lynne11@gmail.com
Facebook Planning Page


Arizona
State Coordinators: Laurie Myers
and Tina Garcia (L.E.A.P.)
Protest at the Mayo Clinic
When: Saturday, May 17at 10:00am - 5:00pm in PDT
Where: Scottsdale, Az
We will be having a wellness meeting at the Courtyard Marriot with speakers featuring nutrition and minerals to help Lyme Disease symptoms
Come and share receipes get support and raise awareness for Lyme Disease treatments and research.
Raffles give aways and information sharing support.

See More Information Here
Facebook Planning Page


California

State Coordinator: Sandi Bohle
This year we are joining forces with Lyme Disease.org. The LA Lyme Walk & our rally will be held at Palisades Park in Santa Monica on Sunday May 18th beginning at noon.
What: Lyme Walk and Rally
When: May 18, 2014 starting at noon
Where: Palisades Park in Santa Monica, Ca
Southern California Facebook Planning Page
Southern California Event Information Page


Connecticut
State Coordinator: Tracy Will
Ct Facebook Planning Group



Florida
State Coordinator: Melissa Ferwerda Bell
Bite Back for Lyme
Where: Jacksonville, Fl
When: May 17, 2014
Contact: FLDA@comcast.net
Click Here for Details!


Illinois
State Coordinators:
Jim Berger
Contact:: bjimbest@aol.com
Dave Marsh
Volunteers: Debbie Nall-O'Dear 

What: Lyme Rally
When: May 16 & 17, 2014 11:00AM - 4:00PM
Where: Water Tower Place, Water Tower Park, The Tribune Tower, & IL State Medical Society
http://2014chicagolymeprotest.blogspot.com/
Illinois Facebook Planning Group


Indiana
State Coordinator: Valerie Stauffer
Contact: valeriestauffer61@yahoo.com
Indiana Facebook Planning Page

Iowa
Worldwide Lyme Rally Iowa
When: Saturday, May 10 at 12:00pm - 3:00pm
Where: Des Moines Capitol, Des Moines, Iowa
At 12:30 pm get ready for the
Ride 4 Lyme
Meet between 12:30 and 1pm on the west side of the Capitol building. Wear green shirts! Put green ribbons on your vehicle for awareness! All trucks, vehicles, classic, antique, motorcycles and bicycles welcome!
Join the Facebook Group for the Iowa Rally
Join the Facebook Group for the Ride 4 Lyme

Kansas
Kansas Tick Borne Advocates
present the "Hope for Healing Walk"
Click Here for More Information
Kansas in the Worldwide Event Info


Maine

Event # 1What: Lyme Awareness Protest with Speakers
When: May 16th
Where: at the state house
When: 11-2
State Coordinator:
Holly Lounder Email: ellsworthata@gmail.com
Photographer: Angele Rice
Click Here to Join our Facebook Planning Page
Maine Event Info

Event # 2
What: Lyme Awareness Booth
When: Saturday, May 17, 10:00am - 2:00pm in EDT
Where: Maine Coast Bookshop & Cafe
158 Main St., Damariscotta, Maine 04543
Coordinator: Paula Jones paulajjones@yahoo.com
For More Event Information Click Here
Click Here to Join our Facebook Event


Michigan
State Coordinators
Ruth James
Contact: ruthjames4@hotmail.com
Wendy Schryver
Contact: aboutlyme@gmail.com
Photographer: Mike Bellomo
Join our Facebook Planning Page


Minnesota
State Coordinator: Vicki Koecher and Kara Welch

Ticked Off Art: Understanding Lyme Through Art
When: May 5 - 29
Opening Reception May 8, 6:30-8:30pm
Where: Maple Grove Arts Center is located at 7916 Main Street, Maple Grove, MN 55369
Join our Minnesota Art Show Facebook Planning Page
Click Here for Art Show Information



Montana
State Coordinator: Brenna Faulk
Contact: twystoflyme@gmail.com
What: Educational and awareness booth at our farmers market
When: May 17th
Where: Hamilton, MT
Join our Facebook Planning Group
Click Here for More Information


New Mexico
State Coordinator: Diane Marie
Email: Dianemarie555@gmail.com
What: Lyme Protest
When: Saturday, May 17th, 2014 1:00 - 3:00An event is being planned for New Mexicans, in Albuquerque. We'll carry signs at a busy intersection Saturday, May 17th, 1:00 - 3:00. Lyme patients, family members, friends, please attend if you are interested in spreading Lyme Disease Awareness.
Join Our New Mexico Facebook Planning Page
Click Here for New Mexico Event Information



New Hampshire
State Coordinator: Nancy Bourassa
Join our Facebook Page
Click Here for Information


New York
State Coordinator: Eva Haughie
New York for WORLD WIDE LYME AWARENESS
When: MAY 16, 2014, 12 Noon To 6 PM
Where: County Road 111 Manorville, Suffolk County, NY
For More Information
Join the Facebook New York Page


North Dakota
State Coordinator: Brigid Steel
Contact:: Facebook
ND Facebook Planning Group


Ohio
State Coordinator: Melissa Breeze Bolte
Contact: breeze7304@yahoo.com
What: Lyme Awareness Booth
When: May 10th from 12-6 pm
Where: Great Northern Mall (4954North Olmsted, OH 44070)
Join Our Facebook Page
For More Information Click Here

Oregon
Coordinator: Deb Divegirl
When: Saturday, May 17at 10:00am - 5:00pm in PDT
Where: Eugene, Oregon
Click Here for more Information
Join our Facebook Page


Pennsylvania
Coordinators: Bambi Albert and Maria Purcel
Contact: mpursel53@hotmail.com
Pennsylvania Worldwide Lyme Awareness Protest Event
When: May 10, 2014 10am - 5pm
Where: Cabela's Hamburg, PA 19526
We will have a table with Lyme Disease brochures, posters and information to hand out to the public.
Join our Pennsylvania Facebook Planning Page
Click Here for Pennyslvania Worldwide Lyme Event Information


Virginia
Erin Senger
Contact: erinedoty@yahoo.com
Virginia Facebook Planning Page
Worldwide Lyme Disease Awareness Rally
at the Blacksburg Farmer’s Market
Saturday, May 17, 2014
11 a.m. to 2 p.m.
Please join us at the Blacksburg farmer’s market for
Lyme disease awareness balloons, information, testimonials, and tick prevention tips.


Washington
State Coordinators:
Lorraine and Anna Hart

We are linking our 6th annual Wa Lyme Fighters Street Rally to the Worldwide Lyme Protest for the 2nd year in a row!
What: Lyme Street Rally at Intersection
When: May 17, 2014 2pm
Where: Gig Harbor 6703 Tyee Dr NW, 98332
This is a busy intersection which affords us the opportunity to impact hundreds of people with signs in just a short time. An adjoining parking lot lets people safely stop for more information. Not too strenuous with a good return.
Join our Washinton Facebook Planning Page
Click Here for More Washington Event Information


West Virginia
State Coordinator: Kelly Edmonds
Contact: kellyknits@comcast.net
Details coming soon


Wisconsin
State Coordinators:
Jennifer Christie and Della Haugen
What: Lyme Disease Rally
When: Saturday, May 17, 2014 11am - 2pm
Where: The Wisconsin State Capitol (the State St side of the building.)
We need many people to show up for this if we want to get media attention! Lyme patients and the friends and family of Lyme patients, please come and help support us in making a change in Lyme Disease Awareness around the world! This is our chance to be seen and heard. Several states and several countries will all be rallying and protesting on this same weekend.
Click Here for Wisconsin Rally Information
Join our Madision Event Facebook Page!

Worldwide Patients are raising awareness and protesting to highlight the need for:

1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit. 

Lyme foundations that support the Worldwide Efforts

Empire State Lyme

LymeDisease.org

TBDA

People who Donated to the Auctions

Angele Rice

Tera Banks

Dollar in the Bucket Donators

Thank you to all who filled our Billboard Bucket!

Lymenator 
for sending several states tick testing kits to hand out.
Stop by their website! www.lymenator.com 

And a big humungous thank you to the State Coordinators

All who volunteer their time and energy even though being sick themselves to help change this situation for all Lyme Patients Worldwide

Michelle Louie

Lynne Hatcher

Laurie Myers

Tina Garcia

Sandi Bohle

Tracy Will

Melissa Ferwerda Bell

Jim Berger

Dave Marsh

Debbie Nall-O'Dear 

Valerie Stauffe

Joni Comstock

Kansas Tick Borne Advocates

Holly Lounde

Angele Rice

Paula Jones

Ruth James

Wendy Schryver

Vicki Koecher

Kara Welch

Brenna Faulk 

Diane Marie

Nancy Bourassa

Eva Haughie 

Brigid Steel

Melissa Breeze Bolte

Deb Divegirl

Bambi Albert

Maria Purcel

Erin Senger

Lorraine and Anna Hart

Kelly Edmonds

Jennifer Christie

Thank you to Country Coordinators

For coming together globally to unite in the cause for recognition, research and a cure. 

Karen Smith

Michelle Rauwoens

Marlene Spies

Ana

Jana Nimrichterova

Joan Nielsen

Sophie and Grace Kellaway

Marjatta Vuori 

Kari Ma and Birgit Jürschik-Busbach

Rusznyák Veronika 

Guðjón Egilsson

Franca Cecchinato

Sofia Araújo

Joshua Verhoeven (Hope 4 Lyme)

Maj-Britt Marie Hovland Grevstad and Ingrid Nordtun

Pamela Thompson

CharlottMartina Müller

Lisa Hilton

Blacksburg, Virginia Worldwide Lyme Disease Awareness Rally

Click Below to See Which Campaign You are interested in Helping with

Lyme Patient Map-Online Campaign-Ribbons Across America-Samantha’s Green Light Project

 -Add Yourself to the Google Plus Photo Album Campaign-Media Campaign-Billboard Campaign-Lyme Lives Here Campaign

For More Details about the Worlwide Lyme Protest Click Here

Worldwide Lyme Disease Protest Mission Statement 

Worldwide Patients are raising awareness and protesting to highlight the need for:

1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit. 

Iowa in the Worldwide Lyme Protest 2014

Worldwide Lyme Rally Iowa

When: Saturday, May 10 at 12:00pm - 3:00pm

Where: Des Moines Capitol, Des Moines, Iowa

At 12:30 pm get ready for the 

Ride 4 Lyme

Meet between 12:30 and 1pm on the west side of the Capitol building. Wear green shirts! Put green ribbons on your vehicle for awareness! All trucks, vehicles, classic, antique, motorcycles and bicycles welcome! 

Join the Facebook Group for the Iowa Rally

Join the Facebook Group for the Ride 4 Lyme

Worldwide Lyme Disease Protest Mission Statement 

Worldwide Patients are raising awareness and protesting to highlight the need for:

1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit. 

Joni Comstock being interviewed at the Iowa state capitol

Worldwide Lyme Protest Event Information

Where: Global

When: May 16-18, 2014

What: Lyme Awareness Events around the world

The Worldwide Lyme Awareness Protest was started in 2013. Over 30 countries banned together to help spread awareness and protest over the lack of attention Lyme Disease gets. We want to bring attention to the need for research and education about tick borne infections.

Please join these sites!

WWLDAP Pinterest

WWLDAP Google Plus Page

WWLDAP Twitter

WWLDAP International Facebook Page

WWLDAP US Facebook Page


Event Information


US Coordinators
Lisa Hilton Email: lisa@whatislyme.com


Auction Coordinator
Angele Rice Email: angbet35@gmail.com


Media Volunteers
Michelle.Marie.Louie@gmail.com Phone: 602-635-0005





Alabama
State Coordinator: Lynne Hatcher
Contact: 11lynne11@gmail.com
Facebook Planning Page


Arizona
State Coordinators:
Laurie Myers
Tina Garcia
Protest at the Mayo Clinic

See More Information Here
Facebook Planning Page


California

State Coordinator: Sandi Bohle
This year we are joining forces with Lyme Disease.org. The LA Lyme Walk & our rally will be held at Palisades Park in Santa Monica on Sunday May 18th beginning at noon.
What: Lyme Walk and Rally
When: May 18, 2014 starting at noon
Where: Palisades Park in Santa Monica, Ca
Southern California Facebook Planning Page
Southern California Event Information Page


Connecticut
State Coordinator: Tracy Will
Ct Facebook Planning Group



Florida
State Coordinator: Melissa Ferwerda Bell
Bite Back for Lyme
Where: Jacksonville, Fl
When: May 17, 2014
Contact: FLDA@comcast.net
Click Here for Details!


Illinois
State Coordinators:
Jim Berger
Contact:: bjimbest@aol.com
Dave Marsh
Volunteers: Debbie Nall-O'Dear 

What: Lyme Rally
When: May 16 & 17, 2014 11:00AM - 4:00PM
Where: Water Tower Place, Water Tower Park, The Tribune Tower, & IL State Medical Society
http://2014chicagolymeprotest.blogspot.com/
Illinois Facebook Planning Group


Indiana
State Coordinator: Valerie Stauffer
Contact: valeriestauffer61@yahoo.com
Indiana Facebook Planning Page



Kansas
Kansas Tick Borne Advocates
present the "Hope for Healing Walk"
Click Here for More Information
Kansas in the Worldwide Event Info


Maine

Event # 1What: Lyme Awareness Protest with Speakers
When: May 16th
Where: at the state house
When: 11-2
State Coordinator:
Holly Lounder Email: ellsworthata@gmail.com
Photographer: Angele Rice
Click Here to Join our Facebook Planning Page
Maine Event Info

Event # 2
What: Lyme Awareness Booth
When: Saturday, May 17, 10:00am - 2:00pm in EDT
Where: Maine Coast Bookshop & Cafe
158 Main St., Damariscotta, Maine 04543
Coordinator: Paula Jones paulajjones@yahoo.com
For More Event Information Click Here
Click Here to Join our Facebook Event


Michigan
State Coordinators
Ruth James
Contact: ruthjames4@hotmail.com
Wendy Schryver
Contact: aboutlyme@gmail.com
Photographer: Mike Bellomo
Join our Facebook Planning Page


Minnesota
State Coordinator: Vicki Koecher and Kara Welch

Ticked Off Art: Understanding Lyme Through Art
When: May 5 - 29
Opening Reception May 8, 6:30-8:30pm
Where: Maple Grove Arts Center is located at 7916 Main Street, Maple Grove, MN 55369
Join our Minnesota Art Show Facebook Planning Page
Click Here for Art Show Information



Montana
State Coordinator: Brenna Faulk
Contact: twystoflyme@gmail.com
What: Educational and awareness booth at our farmers market
When: May 17th
Where: Hamilton, MT
Join our Facebook Planning Group
Click Here for More Information


New Mexico
State Coordinator: Diane Marie
Email: Dianemarie555@gmail.com
What: Lyme Protest
When: Saturday, May 17th, 2014 1:00 - 3:00An event is being planned for New Mexicans, in Albuquerque. We'll carry signs at a busy intersection Saturday, May 17th, 1:00 - 3:00. Lyme patients, family members, friends, please attend if you are interested in spreading Lyme Disease Awareness.
Join Our New Mexico Facebook Planning Page
Click Here for New Mexico Event Information



New Hampshire
State Coordinator: Nancy Bourassa
Join our Facebook Page
Click Here for Information


New York
State Coordinator: Eva Haughie
New York for WORLD WIDE LYME AWARENESS
When: MAY 16, 2014, 12 Noon To 6 PM
Where: County Road 111 Manorville, Suffolk County, NY
For More Information
Join the Facebook New York Page


North Dakota
State Coordinator: Brigid Steel
Contact:: Facebook
ND Facebook Planning Group


Ohio
State Coordinator: Melissa Breeze Bolte
Contact: breeze7304@yahoo.com
What: Lyme Awareness Booth
When: May 10th from 12-6 pm
Where: Great Northern Mall (4954North Olmsted, OH 44070)
Join Our Facebook Page
For More Information Click Here

Oregon
Coordinator: Deb Divegirl
When: Saturday, May 17at 10:00am - 5:00pm in PDT
Where: Eugene, Oregon
Click Here for more Information
Join our Facebook Page


Pennsylvania
Coordinators: Bambi Albert and Maria Purcel
Contact: mpursel53@hotmail.com
Pennsylvania Worldwide Lyme Awareness Protest Event
When: May 10, 2014 10am - 5pm
Where: Cabela's Hamburg, PA 19526
We will have a table with Lyme Disease brochures, posters and information to hand out to the public.
Join our Pennsylvania Facebook Planning Page
Click Here for Pennyslvania Worldwide Lyme Event Information


Virginia
Erin Senger
Contact: erinedoty@yahoo.com
Virginia Facebook Planning Page


Washington
State Coordinators:
Lorraine and Anna Hart

We are linking our 6th annual Wa Lyme Fighters Street Rally to the Worldwide Lyme Protest for the 2nd year in a row!
What: Lyme Street Rally at Intersection
When: May 17, 2014 2pm
Where: Gig Harbor 6703 Tyee Dr NW, 98332
This is a busy intersection which affords us the opportunity to impact hundreds of people with signs in just a short time. An adjoining parking lot lets people safely stop for more information. Not too strenuous with a good return.
Join our Washinton Facebook Planning Page
Click Here for More Washington Event Information


West Virginia
State Coordinator: Kelly Edmonds
Contact: kellyknits@comcast.net
Details coming soon


Wisconsin
State Coordinators:
Jennifer Christie and Della Haugen
What: Lyme Disease Rally
When: Saturday, May 17, 2014 11am - 2pm
Where: The Wisconsin State Capitol (the State St side of the building.)
We need many people to show up for this if we want to get media attention! Lyme patients and the friends and family of Lyme patients, please come and help support us in making a change in Lyme Disease Awareness around the world! This is our chance to be seen and heard. Several states and several countries will all be rallying and protesting on this same weekend.
Click Here for Wisconsin Rally Information
Join our Madision Event Facebook Page!

Worldwide Patients are raising awareness and protesting to highlight the need for:

1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit. 

Arizona's Worldwide Lyme Protest

Protest at the Mayo Clinic

When: Friday May 16 at noon we are going to start to gather around 11:30

Where: Scottsdale, Az

State Coordinators: Laurie Myers 

and Tina Garcia (L.E.A.P.)

We will be having a wellness meeting at the Courtyard Marriot with speakers featuring nutrition and minerals to help Lyme Disease symptoms

Come and share receipes get support and raise awareness for Lyme Disease treatments and research.

Raffles give aways and information sharing support.

Click Below to See Which Campaign You are interested in Helping with

Lyme Patient Map-Online Campaign-Ribbons Across America-Samantha’s Green Light Project

 -Add Yourself to the Google Plus Photo Album Campaign-Media Campaign-Billboard Campaign-Lyme Lives Here Campaign

For More Details about the Worlwide Lyme Protest Click Here