Maine will be having a couple events this May!
Worldwide Lyme Disease Awareness Rally and Protest in Maine
What: Lyme Awareness Protest with Speakers
When: May 16th
Where: at the state house in Augusta
When: 11-2
State Coordinator: Holly Lounder Email: ellsworthata@gmail.com
It's time to come together and have our voices heard. Our government needs to know that it's citizens are unhappy with the denial of chronic lyme, the lack of protection for doctors, and the fact that medicine is often not paid for by insurance companies.
I know many of us our sick and traveling is difficult. Let's try to find a way to get there. Our government needs to see us!
Special Speakers to be announced! |
Please join our event page if you would like to volunteer to help or if you would like more information!
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| Photo Credit: Amy Jo Sirianni |
Worldwide Lyme Disease Awareness Booth in Maine
When: Saturday, May 17, 10:00 am - 2:00pm
Where: Maine Coast Bookshop & Cafe (158 Main St. Damariscotta, Maine 04543
A local Vet and the woman from the State of Maine CDC Lyme Disease division will be coming to be on hand at our Lyme Disease Awareness event May 17th and there will be a FREE MATINEE SHOWING of Under Our Skin here at the local theater on Sunday May 18th.
For More Information Please Contact:
Coordinator: Paula Jones paulajjones@yahoo.com
Tyme for Lyme Walk/Run Event
When: Saturday, May 31at 8:30am
Where: Skowhegan Maine
Worldwide Lyme Disease Protest Mission Statement
Worldwide Patients are raising awareness and protesting to highlight the need for:
1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.
2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.
3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.
4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.
*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”
* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.
5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)
6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit.
Results from the Maine Protests
Awesome radio interview by Paula Jackson Jones, one of the Maine Worldwide Lyme Protest Coordinators. Way to go Paula!
Lyme Lives Here Campaign
People from all over the world were asked to send in their pictures for the "Lyme Lives Here" campaign to show that Lyme Disease is everywhere in the world. Here is Maine's pictures.
Here are some ideas that you can use to raise money for you groups to order t shirts, food and drinks, lyme materials, microphones, equipment or anything that you may need for your awareness event.
2. Order Awareness Jewelry to sell before or at the event..jpg)
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