Where: Global
When: May 16-18, 2014
What: Lyme Awareness Events around the world
The Worldwide Lyme Awareness Protest was started in 2013. Over 30 countries banned together to help spread awareness and protest over the lack of attention Lyme Disease gets. We want to bring attention to the need for research and education about tick borne infections.
Please join these sites!
WWLDAP Pinterest
WWLDAP Google Plus Page
WWLDAP Twitter
WWLDAP International Facebook Page
WWLDAP US Facebook Page
Event Information
US Coordinators
Lisa Hilton Email: lisa@whatislyme.com
Auction Coordinator
Angele Rice Email: angbet35@gmail.com
Media Volunteers
Michelle.Marie.Louie@gmail.com Phone: 602-635-0005
Alabama
State Coordinator: Lynne Hatcher
Contact: 11lynne11@gmail.com
Facebook Planning Page
Arizona
State Coordinators:
Laurie Myers
Tina Garcia
Protest at the Mayo Clinic
State Coordinator: Sandi Bohle
This year we are joining forces with Lyme Disease.org. The LA Lyme Walk & our rally will be held at Palisades Park in Santa Monica on Sunday May 18th beginning at noon.
What: Lyme Walk and Rally
When: May 18, 2014 starting at noon
Where: Palisades Park in Santa Monica, Ca
Southern California Facebook Planning Page
Southern California Event Information Page
Connecticut
State Coordinator: Tracy Will
Ct Facebook Planning Group
Florida
State Coordinator: Melissa Ferwerda Bell
Bite Back for Lyme
Where: Jacksonville, Fl
When: May 17, 2014
Contact: FLDA@comcast.net
Click Here for Details!
Illinois
State Coordinators:
Jim Berger
Contact:: bjimbest@aol.com
Dave Marsh
Volunteers: Debbie Nall-O'Dear
This year we are joining forces with Lyme Disease.org. The LA Lyme Walk & our rally will be held at Palisades Park in Santa Monica on Sunday May 18th beginning at noon.
What: Lyme Walk and Rally
When: May 18, 2014 starting at noon
Where: Palisades Park in Santa Monica, Ca
Southern California Facebook Planning Page
Southern California Event Information Page
Connecticut
State Coordinator: Tracy Will
Ct Facebook Planning Group
Florida
State Coordinator: Melissa Ferwerda Bell
Bite Back for Lyme
Where: Jacksonville, Fl
When: May 17, 2014
Contact: FLDA@comcast.net
Click Here for Details!
Illinois
State Coordinators:
Jim Berger
Contact:: bjimbest@aol.com
Dave Marsh
Volunteers: Debbie Nall-O'Dear
What: Lyme Rally
When: May 16 & 17, 2014 11:00AM - 4:00PM
Where: Water Tower Place, Water Tower Park, The Tribune Tower, & IL State Medical Society
http://2014chicagolymeprotest.blogspot.com/
Illinois Facebook Planning Group
Indiana
State Coordinator: Valerie Stauffer
Contact: valeriestauffer61@yahoo.com
Indiana Facebook Planning Page
Kansas
Kansas Tick Borne Advocates
present the "Hope for Healing Walk"
Click Here for More Information
Kansas in the Worldwide Event Info
Maine
When: May 16 & 17, 2014 11:00AM - 4:00PM
Where: Water Tower Place, Water Tower Park, The Tribune Tower, & IL State Medical Society
http://2014chicagolymeprotest.blogspot.com/
Illinois Facebook Planning Group
Indiana
State Coordinator: Valerie Stauffer
Contact: valeriestauffer61@yahoo.com
Indiana Facebook Planning Page
Kansas
Kansas Tick Borne Advocates
present the "Hope for Healing Walk"
Click Here for More Information
Kansas in the Worldwide Event Info
Maine
Event # 1What: Lyme Awareness Protest with Speakers
When: May 16th
Where: at the state house
When: 11-2
State Coordinator:
Holly Lounder Email: ellsworthata@gmail.com
Photographer: Angele Rice
Click Here to Join our Facebook Planning Page
Maine Event Info
Event # 2
What: Lyme Awareness Booth
When: Saturday, May 17, 10:00am - 2:00pm in EDT
Where: Maine Coast Bookshop & Cafe
158 Main St., Damariscotta, Maine 04543
Coordinator: Paula Jones paulajjones@yahoo.com
For More Event Information Click Here
Click Here to Join our Facebook Event
Michigan
State Coordinators
Ruth James
Contact: ruthjames4@hotmail.com
Wendy Schryver
Contact: aboutlyme@gmail.com
Photographer: Mike Bellomo
Join our Facebook Planning Page
Minnesota
State Coordinator: Vicki Koecher and Kara Welch
When: May 16th
Where: at the state house
When: 11-2
State Coordinator:
Holly Lounder Email: ellsworthata@gmail.com
Photographer: Angele Rice
Click Here to Join our Facebook Planning Page
Maine Event Info
Event # 2
What: Lyme Awareness Booth
When: Saturday, May 17, 10:00am - 2:00pm in EDT
Where: Maine Coast Bookshop & Cafe
158 Main St., Damariscotta, Maine 04543
Coordinator: Paula Jones paulajjones@yahoo.com
For More Event Information Click Here
Click Here to Join our Facebook Event
Michigan
State Coordinators
Ruth James
Contact: ruthjames4@hotmail.com
Wendy Schryver
Contact: aboutlyme@gmail.com
Photographer: Mike Bellomo
Join our Facebook Planning Page
Minnesota
State Coordinator: Vicki Koecher and Kara Welch
Ticked Off Art: Understanding Lyme Through Art
When: May 5 - 29
Opening Reception May 8, 6:30-8:30pm
Where: Maple Grove Arts Center is located at 7916 Main Street, Maple Grove, MN 55369
Join our Minnesota Art Show Facebook Planning Page
Click Here for Art Show Information
Montana
State Coordinator: Brenna Faulk
Contact: twystoflyme@gmail.com
What: Educational and awareness booth at our farmers market
When: May 17th
Where: Hamilton, MT
Join our Facebook Planning Group
Click Here for More Information
New Mexico
State Coordinator: Diane Marie
Email: Dianemarie555@gmail.com
What: Lyme Protest
When: Saturday, May 17th, 2014 1:00 - 3:00An event is being planned for New Mexicans, in Albuquerque. We'll carry signs at a busy intersection Saturday, May 17th, 1:00 - 3:00. Lyme patients, family members, friends, please attend if you are interested in spreading Lyme Disease Awareness.
Join Our New Mexico Facebook Planning Page
Click Here for New Mexico Event Information
New Hampshire
State Coordinator: Nancy Bourassa
Join our Facebook Page
Click Here for Information
New York
State Coordinator: Eva Haughie
New York for WORLD WIDE LYME AWARENESS
When: MAY 16, 2014, 12 Noon To 6 PM
Where: County Road 111 Manorville, Suffolk County, NY
For More Information
Join the Facebook New York Page
North Dakota
State Coordinator: Brigid Steel
Contact:: Facebook
ND Facebook Planning Group
Ohio
State Coordinator: Melissa Breeze Bolte
Contact: breeze7304@yahoo.com
What: Lyme Awareness Booth
When: May 10th from 12-6 pm
Where: Great Northern Mall (4954North Olmsted, OH 44070)
Join Our Facebook Page
For More Information Click Here
Oregon
Coordinator: Deb Divegirl
When: Saturday, May 17at 10:00am - 5:00pm in PDT
Where: Eugene, Oregon
Click Here for more Information
Join our Facebook Page
Pennsylvania
Coordinators: Bambi Albert and Maria Purcel
Contact: mpursel53@hotmail.com
Pennsylvania Worldwide Lyme Awareness Protest Event
When: May 10, 2014 10am - 5pm
Where: Cabela's Hamburg, PA 19526
We will have a table with Lyme Disease brochures, posters and information to hand out to the public.
Join our Pennsylvania Facebook Planning Page
Click Here for Pennyslvania Worldwide Lyme Event Information
Virginia
Erin Senger
Contact: erinedoty@yahoo.com
Virginia Facebook Planning Page
Washington
State Coordinators:
Lorraine and Anna Hart
When: May 5 - 29
Opening Reception May 8, 6:30-8:30pm
Where: Maple Grove Arts Center is located at 7916 Main Street, Maple Grove, MN 55369
Join our Minnesota Art Show Facebook Planning Page
Click Here for Art Show Information
Montana
State Coordinator: Brenna Faulk
Contact: twystoflyme@gmail.com
What: Educational and awareness booth at our farmers market
When: May 17th
Where: Hamilton, MT
Join our Facebook Planning Group
Click Here for More Information
New Mexico
State Coordinator: Diane Marie
Email: Dianemarie555@gmail.com
What: Lyme Protest
When: Saturday, May 17th, 2014 1:00 - 3:00An event is being planned for New Mexicans, in Albuquerque. We'll carry signs at a busy intersection Saturday, May 17th, 1:00 - 3:00. Lyme patients, family members, friends, please attend if you are interested in spreading Lyme Disease Awareness.
Join Our New Mexico Facebook Planning Page
Click Here for New Mexico Event Information
New Hampshire
State Coordinator: Nancy Bourassa
Join our Facebook Page
Click Here for Information
New York
State Coordinator: Eva Haughie
New York for WORLD WIDE LYME AWARENESS
When: MAY 16, 2014, 12 Noon To 6 PM
Where: County Road 111 Manorville, Suffolk County, NY
For More Information
Join the Facebook New York Page
North Dakota
State Coordinator: Brigid Steel
Contact:: Facebook
ND Facebook Planning Group
Ohio
State Coordinator: Melissa Breeze Bolte
Contact: breeze7304@yahoo.com
What: Lyme Awareness Booth
When: May 10th from 12-6 pm
Where: Great Northern Mall (4954North Olmsted, OH 44070)
Join Our Facebook Page
For More Information Click Here
Oregon
Coordinator: Deb Divegirl
When: Saturday, May 17at 10:00am - 5:00pm in PDT
Where: Eugene, Oregon
Click Here for more Information
Join our Facebook Page
Pennsylvania
Coordinators: Bambi Albert and Maria Purcel
Contact: mpursel53@hotmail.com
Pennsylvania Worldwide Lyme Awareness Protest Event
When: May 10, 2014 10am - 5pm
Where: Cabela's Hamburg, PA 19526
We will have a table with Lyme Disease brochures, posters and information to hand out to the public.
Join our Pennsylvania Facebook Planning Page
Click Here for Pennyslvania Worldwide Lyme Event Information
Virginia
Erin Senger
Contact: erinedoty@yahoo.com
Virginia Facebook Planning Page
Washington
State Coordinators:
Lorraine and Anna Hart
We are linking our 6th annual Wa Lyme Fighters Street Rally to the Worldwide Lyme Protest for the 2nd year in a row!
What: Lyme Street Rally at Intersection
When: May 17, 2014 2pm
Where: Gig Harbor 6703 Tyee Dr NW, 98332
This is a busy intersection which affords us the opportunity to impact hundreds of people with signs in just a short time. An adjoining parking lot lets people safely stop for more information. Not too strenuous with a good return.
Join our Washinton Facebook Planning Page
Click Here for More Washington Event Information
West Virginia
State Coordinator: Kelly Edmonds
Contact: kellyknits@comcast.net
Details coming soon
Wisconsin
State Coordinators:
Jennifer Christie and Della Haugen
What: Lyme Disease Rally
When: Saturday, May 17, 2014 11am - 2pm
Where: The Wisconsin State Capitol (the State St side of the building.)
We need many people to show up for this if we want to get media attention! Lyme patients and the friends and family of Lyme patients, please come and help support us in making a change in Lyme Disease Awareness around the world! This is our chance to be seen and heard. Several states and several countries will all be rallying and protesting on this same weekend.
Click Here for Wisconsin Rally Information
Join our Madision Event Facebook Page!
What: Lyme Street Rally at Intersection
When: May 17, 2014 2pm
Where: Gig Harbor 6703 Tyee Dr NW, 98332
This is a busy intersection which affords us the opportunity to impact hundreds of people with signs in just a short time. An adjoining parking lot lets people safely stop for more information. Not too strenuous with a good return.
Join our Washinton Facebook Planning Page
Click Here for More Washington Event Information
West Virginia
State Coordinator: Kelly Edmonds
Contact: kellyknits@comcast.net
Details coming soon
Wisconsin
State Coordinators:
Jennifer Christie and Della Haugen
What: Lyme Disease Rally
When: Saturday, May 17, 2014 11am - 2pm
Where: The Wisconsin State Capitol (the State St side of the building.)
We need many people to show up for this if we want to get media attention! Lyme patients and the friends and family of Lyme patients, please come and help support us in making a change in Lyme Disease Awareness around the world! This is our chance to be seen and heard. Several states and several countries will all be rallying and protesting on this same weekend.
Click Here for Wisconsin Rally Information
Join our Madision Event Facebook Page!
Worldwide Patients are raising awareness and protesting to highlight the need for:
1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.
2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.
3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.
4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.
*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”
* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.
5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)
6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit.
2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.
3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.
4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.
*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”
* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.
5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)
6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit.
Daniela Camara.
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